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Author: Andrea Cockett
Date: February 2012
Journal: Nursing Children and Young People
Issue: Volume 24, Number 1
Keywords: Congenital abnormalities, family, technology dependence, long-term ventilation
Much has been written about the needs of children who are technology dependent and their care. This literature review aims to highlight some of this work – with a particular focus on children who are ventilator dependent – a group that has been extensively researched in the UK. The views of children and their parents were also sought to identify the emotional, financial and practical burdens of living with technology dependence. The most frequently found consequences for children and their families were: a striving for normalisation, social isolation, the emotional burden of caring, financial and practical difficulties, and the tension between parenting and caring.
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